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veganvenom:

This graffiti appeared overnight at 5 different job centres in Birmingham.

It’s referencing the increasingly harsh benefit sanctions in the UK which are punishing disabled people in particular.

Claimants who cannot work due to severe disabilities or chronic illnesses are being categorised as “fit to work” in order to meet targets and are not being given enough money to survive.

The majority of people who legally challenge their benefits sanctions or ‘fit to work’ decision have them overturned, but only after months without the money they need.

Estimates generally put the number of people who have died in the last few years directly due to benefit sanctions in the thousands. These include people who have died of starvation, exposure, because they couldn’t afford electricity to keep their insulin cold, or because they couldn’t afford treatment, among other things.

The DWP has even sent letters to people declaring them fit to work when in fact they have already died from their illness.

Fuck the DWP and job centres.

Good job, whoever painted these!
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star-anise:

hrovitnir:

tikkunolamorgtfo:

anarcho-dragonitism:

anarcho-dragonitism:

can we stop saying that words like dumb and stupid are ableist slurs or ableist language please I’m autistic and that’s just… not what the fuck a slur is bye

A slur is when a word’s principal colloquial usage is intended to target a certain group in a violent manner and stupid and dumb are used in relation to disability like 0.1% of the time. It’s almost always referring to people who say shit completely out of their lane and realm of expertise and it’s actually useful language. It’s like, I’ve been called disgusting for being gay b4 but disgusting is mainly intended to refer to other stuff and it’s not homophobic to use it in a context that has nothing to do with gay ppl. Tired of seeing ppl getting hassled over insulting an idea using the only language that can describe the negative quality of the idea. Like, guys. R***rded is a slur. Stupid and dumb are not damn slurs.

I’m Autistic and Schizophrenic and I think both ND and NT ppl should reblog this if they want

Co-signed by an autistic person with dyspraxia and a learning disorder. 

I’m tired of people not understanding what slurs are.

I certainly respect where people are coming from not liking the terms, and will avoid them around people who are hurt by them; but yes, I do tend to draw my “OK, people are always going to weaponise words, we can’t stop using all of them” line about here too.

I had a small role in the blog that originated “ableist word profiles” and while I’m proud of a lot of what we did on FWD/Forward, and while it was worthwhile to examine the ableist underpinnings of a lot of pejoratives… the effort to police ableist language in an absolutist “you should not do this” way was exhausting. It wasn’t worthwhile. It did not improve the tenor of discourse, derailed important conversations, created a hostile climate, and made the space inaccessible for many disabled people. Its disadvantages outweighed the potential benefit. In conclusion, would not recommend, have given up the effort.

The R-word is a slur. There are legit ableist slurs. But “stupid” and “crazy” are not in the same category.
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fuckyeahasl:

qjusttheletter:

aspergersissues:

I’m still dumbfounded that this passed the house so easily. We need to keep it from passing the senate!

hi! accessibility is important, and especially with regard to things about & impacting disabled people! please make sure these sorts of posts in particular have image descriptions! 

[ID: collection of tweets from Amanda Hackwith @ajhackwith reading

“If you’re fuzzy on why changes to the ADA is such a big deal, I get it. I’m keenly aware of what being abled blinds you to. I’m here to introduce you to the thing that dominates my husband and I’s life: Logistics.
Hey. Abled friends.
This thread is for you. #HR620

Disclaimer: I am not physically disabled. My husband is. He has used a wheelchair since birth. I’m using ‘we’ in here because that’s how we’ve experienced it, and this is shared with his permission. OK? Ok.

The reality of living with a disability is Logistics. We don’t just do something. You figure out if we CAN do something. And then try to chase down the secret hidden puzzle of how WE do it. Because, I guarantee you, we are the exception. 
We are always the Exception.

So: join us. We leave home. We don’t call for an accessible taxi because that will take an hour. We can’t take a zipcar because there’s no hand controls. Walking through the door is Logistics.

We take a bus, praying that no one else with a wheelchair, walker, baby carriage, grocery bag, or big-ass backpack has already taken up the two accessible spots on the entire bus. Two. If so, we’re out of luck.

Or we take a hip, tech-will-set-us-free rideshare. There is no accessible option in the app. We pray that the ride that comes won’t drive off when they see a chair. That the folding chair will fit.

Maybe we walk home. We fought city hall for neighborhood curb cuts last year! Only fancy condo construction has torn them out again. For months. So we walk in the gutter of a busy industrial street.

We see a show. We can’t buy tickets online. We have to call to see if one of the five accessible seats in the theatre is available. There’s only one ‘companion’ seat. We aren’t expected to have friends.

We book a hotel. We have to investigate how crappy the accessible room is. (It’s usually a less desirable retrofitted room.) How a ‘normal’ room is laid out. If we can ‘get away’ with being treated as normal. For once.

We fly. We introduce ourselves to the attendants. We PROMISE we won’t be a bother. That we won’t need assistance. That we won’t need to rely on the rickety chair they want to strap him to, Hannibal-style. We make the attendants nervous.

We fly. We successfully board, but the bathroom is twenty feet to the back of the plane. We don’t have our chair. We hope we don’t need to pee for the next nine hours.

We want to do a fun tour of a new city/country/landmark. We spend hours calling tour companies, emphasizing how low fuss we are, how independent we are, how we’re one of the ‘cool’ disableds, if only they have room to fold his chair with the luggage. We promise to be good.

We want to eat at a special restaurant. It’s in a historical building. We crawl on our knees and throw the chair up the stairs to eat there anyway. There are stairs and there are stares. We are everyone’s free entertainment.

We eat at a restaurant. It’s accessible, sure! Just call ahead and Jimbob will throw a board across the steps for you to roll up. Or there’s an accessible entrance! It’s the loading ramp, out back. Through the pee-soaked alley and trash cans. Can’t miss it.

We eat it a restaurant. It’s totally accessible! Except for the bathroom upstairs. You can hold it until we get home, right honey?

Work has a social event. It’s held at one of the above ‘trendy’ restaurants. But HR totally apologizes, okay? Be cool. We can be cool.

We want to go home. We become invisible to taxis. He hangs back until I flag one down and glare the driver into submission.

W apartment hunt. All the cute ground floor dog-friendly units are lofts with stairs. All the accessible units have been rented out to able-bodied people because ‘no one wants them’.

We apartment hunt. The ‘large’ bedroom doesn’t leave enough room to either side of the bed for a wheelchair to sit. The glitzy new apartments have bathroom doors too small to get through.

We apartment hunt. The building is totally accessible! Except for that one tiny step. In the common room. To all the amenities you’re paying for.

And this is important: We are white, educated, financially secure, fairly young and healthy aside from the wheelchair. In other words: BEST CASE SCENARIO. We literally are operating and interacting with the ADA on every privilege we can manage.

If you’re surprised by what I’ve said, keep in mind the majority of the disabled community has it so much worse. With so much less resources. Even WITH the existing ADA. #HR620

No imagine how much worse, more hostile, the world will be if every target of discrimination had to ask each business, in writing, one at a time, to please not break the law. And they have 90 days to ignore them. And another 180 after that.
Every restaurant. Every store. #HR620

Imagine you had to beg every business to allow you to exist. Imagine people complaining about ‘nuisance lawsuits’ and ‘support peacocks’ to you. Your existence is a nuisance. Your existence is over legislated. Your existence is unnecessary.
Now call your damn senators. #HR620 “

/end ID]

CALL YOUR DAMN SENATORS
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mrozna:

hawkeyedflame:

biphobicerasurer:

hawkeyedflame:

t-i-a-r-n-a-c-a-p-a-i-l-l:

If you’re one of those people who thinks executive dysfunction only happens for things we don’t like (school, cleaning,) then please consider the fact that I’ve been meaning to plug my phone in for 20 minutes and I’m now at 2% and still putting it off to write this post ¯\_(ツ)_/¯

My anime/video game list consists of over 100 titles, easily, and yet I almost never get around to watching/playing any of them.

Executive dysfunction is not just for boring or unenjoyable things. It’s for everything. Even eating.

What is executive dysfunction? O.o

Put simply, it’s difficulty/inability with initiating tasks. The prefrontal cortex is responsible for executive functions, like decision-making and impulse control. People with ADHD and other neurological disorders that affect the prefrontal cortex often experience difficulty making decisions and performing tasks, as well as exercising self restraint. Part of why people with ADHD tend to procrastinate so badly is out of genuine inability to begin tasks, even if they’re very important.

It feels, for me at least, like I’m constantly waiting for something and I can’t start X task because I’m waiting. I never know what exactly I’m waiting for, but that doesn’t stop me from wasting hours and days not doing the things I need to do, even if I have a desire to do them.

It feels, for me at least, like I’m constantly waiting for something and I can’t start X task because I’m waiting. I never know what exactly I’m waiting for, but that doesn’t stop me from wasting hours and days not doing the things I need to do, even if I have a desire to do them.

Oh thank god, someone put it into words.

For me it’s also waiting for the “right” time to come to complete the task because for some reason my brain thinks doing the task at any other time is horribly, horribly wrong, weird, and out of order. The “right” time might come eventually, might not. It’s a lottery.
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phoenixonwheels:

peonyb0y:

phoenixonwheels:

phoenixonwheels:

Just for once I’d like to tell the gate agents and flight attendants that my folding wheelchair is going into the onboard closet and not have them tell me there’s “no room”. Bitch that’s a wheelchair closet, not a “your bags” closet. Move your damn bags where they belong.

Ok, so according to my friendly aviation expert, this is a Big Fucking Deal. In fact, if an airline argues with you about putting your wheelchair in the wheelchair closet or even suggests there may not be room, unless there is already another passenger’s wheelchair in that closet, they have violated federal law.

CFR Title 14, Chapter II, Subchapter D, Part 382, Subpart E, Section 382.67, Subsection (e)

“As a carrier, you must never request or suggest that a passenger not stow his or her wheelchair in the cabin to accommodate other passengers (e.g., informing a passenger that stowing his or her wheelchair in the cabin will require other passengers to be removed from the flight), or for any other non-safety related reason (e.g., that it is easier for the carrier if the wheelchair is stowed in the cargo compartment).”

Source

This is hugely important because it means that if this happens to you, you should report their asses to the DOT. Why? Because these statistics are published every year for every airline, and the airline gets a huge ass fine for every violation. If we want to see change, we need to make airlines literally pay every time they treat us this way.

Since I believe this is post mainly applies to Americans, here’s an addition for Canadian air travellers.

Code of Practice: Aircraft Accessibility for Persons with Disabilities (Air Code)

Scope: Aircraft with 30 or more passenger seats operated by Canadian carriers.

“The Air Code sets out that if the configuration of an aircraft with 100 or more passenger seats permits it, the aircraft should have on board storage space to accommodate a manually operated folding or collapsible wheelchair. If not, the passenger should have prompt access to their wheelchair upon arrival at destination and the carrier should make every reasonable effort to provide it at connecting stops where all passengers are permitted to deplane.”

Source

Canada is, unfortunately, far more lax RE disability laws. Perhaps because Canada has no federal accessibility act like the USA… However, if any Canadian airline damages or loses your mobility device, they are required to repair, replace, or refund your mobility device.

Like OP says, if airline staff harangue you over your mobility device, or violate codes they should be following, report them.

Here’s the Canadian law for all my Canadian peeps! The original law is indeed US law and applies to all flights wholly within the US plus all flights originating or terminating within the US (so a flight from Toronto to Detroit would have to comply with the US laws). I believe it also applies to all flights on any US airline even if that flight is totally outside the US (e.g., a Delta Airlines flight from Tokyo to Singapore), but you’ll want to check that before you fly.

Please note that under US law, if an airline damages your wheelchair they have to repair it or else pay you the original purchase price. You’ll need to report the damage before you leave the airport. Don’t sign anything without reading it carefully - airlines have been known to try to get passengers to sign away their rights to this money.
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“It’s amazing that in 1969 we as a society managed to put a man on the moon and yet we still can’t get a wheelchair user from one railway station to another nearly 50 years later… You have to come to the conclusion that it is a lack of will to create a more accessible world, NOT lack of technology or design skills.”

- Tony Heaton, English sculptor and wheelchair user
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allthecanadianpolitics:

shouldahadav8engine:

freshhwizard:

kestrel-tree:

theworksofshanyu:

estelliagoespolitical:

allthecanadianpolitics:

Today in Canadian politics, All Liberal MP’s voted against an NDP private member bill which would make it easier for people with disabilities to access government services.

This is what the bill does:

SUMMARY

This enactment amends the Department of Employment and Social Development Act to require the Minister to provide information and guidance on applications for programs and services for which persons with disabilities may be eligible and to implement a streamlined application process that, among other things, reduces the administrative burden on applicants. It also provides for reporting requirements in relation to the application process.

Full text of the bill here.

If you’re Canadian and disabled, the Liberals don’t care about making your life easier.

Not surprised

This is so necessary though!!! 

For people who don’t know what the application process is currently like, as a person with multiple mental illnesses just trying to get basic financial assistance, I had to send in:

fourteen pages of forms

3 page form from a psychiatrist

a letter explaining my situation

6 months of bank statements with the transactions labelled

list anyone who had “helped” me in any way in the past year (including things like “buying me groceries”)

A letter from anyone I babysat for in the past year

“pay slips” from babysitting

A letter from my parents saying they were no longer supporting me

A copy of my university diploma

proof I was a Canadian Citizen (which they tried to claim showing them my citizenship card wasn’t enough for?!)

And after all that they delayed my application for a month by sending me 6 pages of parental contribution forms, which my parents who have a PhD and Masters degree couldn’t understand, and which weren’t applicable to me as a university graduate anyway. Which they knew. And if I had sent them in would have disqualified me from benefits.

Then 6 months later I lost my disability status, cutting my income almost in half, with no warning or explanation, because my psychiatrist hadn’t checked a box to say I would never recover from depression and anxiety, therefore making it a “short term” medical problem.

I was incredibly lucky to find a volunteer organisation to help me through the process, which would have literally been impossible for me otherwise. This isn’t just a case of ‘streamlining’ the application process. This is a case of disabled people being homeless and starving because access to programs legally required to help us is fucking obstacle course.

My entire job literally revolves around helping people with intellectual disabilities and their families navigate the services, supports, and programs available to them in our province and as Canadians. As in, it’s a full-time fucking job to navigate all this, and we expect people with disabilities and their families to do it on top of everything else.

This is partisanship at its worst, and it’s an epidemic not just in Parliament but also across provincial legislatures. There is such an unwillingness from parties in power to vote for bills put forth by others, even when they make sense or align with that party’s own agenda.

This link: https://openparliament.ca/bills/42-1/C-348/ provides all of the readings in the House of Commons that took place on January 30th 2018 with regards to Bill C-348

From browsing the comments made, it seems the Liberals didn’t support it, even though they seem to be in agreement about its need, because:

a.) In 2019 they will introduce disability legislation of their own. So they don’t see any point in supporting the NDP bill now. Because why not fix this problem now? 

I’m also not seeing any direct claim from their liberals that their legislation will specifically address this issue when they table it. There’s a lot of talk of generalities when it comes to disabilities and accessibility.

b.) They think streamlining disability applications by eliminating the need for multiple forms to prove your disability would make the system more difficult, not easier. Even when NDP members explained how it would make the system more efficient, the Liberals said they still wouldn’t support it. I’m really not following this logic at all.
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compostpile:

compostpile:

when it comes to consciousness raising you can spend time telling someone “crazy” is a slur or you can spend time explaining that what looks like “care” or “cure” or “mercy” to them is actually eugenics or abuse. one of these projects has to precede the other and i bet you can guess which one i would prioritize

you’re either going to build a base of clueless liberals who learn by rote to nitpick their language for anything with the remotest connection to ability, or you’re going to help them develop the alertness and critical eye necessary to recognize eugenics and abuse. i don’t think those things are mutually compatible in an immediate timeframe, because one locates both the root and branch of oppression in a disembodied cloud of language and thought, and the other locates it in the real material structures that we need to confront immediately in order to save actual lives. not saying “crazy” isn’t going to get anyone out of forced institutionalization
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thesylverlining:

santorumsoakedpikachu:

autistic-knight-errant:

I honestly think that we would eliminate one of the major causes of ableism if we stopped basing people’s worth off how much revenue they generate.

This measure is worthless. Actually, it is worth less than nothing.

I used to be a programmer for a spammer. Being rather young, naive, and also desperate for some kind of income, I had no idea what “lead generation” meant and had no idea that the fact that they didn’t talk about how their nebulous product actually helped anyone was a huge red flag. I took the job, slowly learned the codebase, and it took me months to figure out what kind of practices this place actually employed.

I was asked to put in obnoxious popups, but hide the popups for traffic coming in from Google so that Google wouldn’t cut off their sponsored traffic because the site violated their standards, a few months into my time there. That was when I began to realize the kind of place I was working at. Then I was asked to create a throwaway email account to test something, and I found out what actually happened to the poor people who put their information in for Free Insurance Quotes. They were inundated with spam. I found out the company had no site of its own, just hundreds of these “Free Insurance Quotes” sites all with slightly different stock photos and slightly different forms and a “complaints” page that was very hard to find with an email that was never checked.

I was a Hardworking Taxpaying American when I worked at that job. I was, according to this capitalist logic, contributing to society and of much more value than a disabled person who supposedly is a leech on society.

I was making the world worse by working at that job. I would have been making the world better if I did absolutely nothing but stare at the wall all day rather than work that job.

Many jobs are like this. Anyone who works at an oil company is making the world worse. Anyone who works at a tobacco company is making the world worse. People in various abusive therapy industries are making the world worse. I’m sure you can name plenty of other jobs in this category. The world would be better if those jobs did not exist.

Now, I am disabled. I am chronically ill, and I cannot even work a sedentary job because having to sit up for eight hours at a time would make me have to lie in bed for days.

I am making the world much better now by replacing the invasive grasses on my front lawn with strawberries that attract native bees, by sealing my house to increase its energy efficiency, by taking care of a flock of chickens and doing my best to ensure that they have a good happy life, by replenishing the soil in the yard with compost and chicken manure, than I was at that job. And I don’t do very much - I can’t.

Equating the arbitrary numbers one accumulates for oneself to one’s actual value or contribution is a dangerous lie, and it is poisoning the planet.

This is so incredibly important. Thank you for this.
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into-the-weeds:

onewordtest:

sciendere:

ayalaatreides:

misspider:

gayjamesmcgraw:

The Shape of Water (2017) dir. Guillermo del Toro

The literally silent women protagonist leaves a super bad taste in my mouth.

She’s deaf and speaks with sign language, she’s not a silent woman. Like, can we agree that deaf representation in media is important? Can we agree that ASL representation in media is important? This is an adult-oriented romance/sci-fi movie where the female lead is a deaf woman. How can you act like this isn’t significant? The last gif has a deaf woman in the 60s standing up to an aggressive man and telling him to go fuck himself. 

This movie is doing something that has probably never been done before. But hey, she can’t talk “normally” like a hearing woman and that’s bad, so go off I guess.

reblogging this as an example of ableist feminists that me and @onewordtest have discussed in the past.

oh man, not this shit again. can abled feminists just stop? 

um, but, also she’s not deaf. she’s hearing and mute. (personally, I think she’s gonna read as autistic from everything I’ve seen). which is still a disabled female romantic lead character, which is still great representation and important. 

#the idea that disabled women existing in fiction is sexist (via @fourloves)
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ophidian-naiad:

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mamoru:

lolodapsycho:

this-isnt-my-bra:

Once my friend Henry was accused of wearing wireless headphones by a substitute so she said for him to hand them over so he took them off and handed them to her. Then later on she asked him a question and he didn’t respond so she said it louder and he still didn’t respond. She asked why he was not responding and he said “I can’t understand you ma'am, you took my hearing aids.”

HOLY SHIT

one time we had a sub that was handing back papers and called my name. I asked if someone could grab it for me and she started mocking me for not even standing up. taunting me asking why I was not walking up to the front to get the paper myself.

my classmates went dead silent and after the sub’s laughter ended someone informed her that the wheelchair parked nearby belonged to me

My sister once had her insulin pump ripped off of her because her exam proctor (a sub) thought it was some cheating device.
He soon figured out that it was, in fact, not, when the port on her side (the place the needle goes in) started bleeding through her shirt. Her pump started beeping frantically, because that’s what it does, and it was general chaos until my sister ripped what’s basically her pancreas out of his hands, told her friend “Let the next proctor know I’ll need extra time,” and walked out of the room towards the nurse.

Literally schools are shit with disabilities. In elementary school I was having a high blood sugar reaction(cold sweats to rapid passing in and out of consciousness, vomiting and finally leading to a massive seizure before you die) and I KNEW I had to go to the nurse cuz I was getting worse. Kept telling my teach I needed to go and he kept saying no till finally I felt myself about to throw up and I’m screaming LET ME GO (i was a little kid to me i couldnt do anything in an institution without an adults say so or id basically go to hell) and the bitch said SHUT YOUR DAMN MOUTH AND PAY ATTENTION TO THE LESSON where I proceeded to projectile vomit all over my desk and he jut kept going on with the lesson. Finally I just booked it out of the room but I was too far gone to even REMEMBER where the nurses office was let alone where the hell I was that my class literally just left and helped me to the nurses office. I immediately went to the hospital and officially died for 5 minutes before I was revived. I could have stayed dead all because some fuck twad thought his lesson was more important than a students life

After Columbine, a local school installed metal detectors and made everyone walk through them and put their bags on a table for a teacher to search. 

A few days into the school year, a teacher ripped a boy’s insulin pump off him because she thought it was a weapon, despite he and his sister insisting it was an insulin pump and he needed it to live. 

I don’t know how many of you are still in school but I have some valuable knowledge that might actually help with this problem! In the United States there’s this thing called a 504 Plan that you can get which basically gives you legal protection from disability/chronic illness discrimination in public schools. 

Students can qualify for 504 plans if they have physical or mental impairments that affect or limit any of their abilities to: walk, breathe, eat, or sleep; communicate, see, hear, or speak; read, concentrate, think, or learn; stand, bend, lift, or work

 Examples of accommodations in 504 plans include: preferential seating, extended time on tests and assignments, reduced homework or classwork, verbal, visual, or technology aids, modified textbooks or audio-video materials, behavior management support, adjusted class schedules or grading, verbal testing, excused lateness, absence, or missed classwork

 I’m a type one diabetic and my school nurse would do stuff like keep all my meds in a locked cabinet, not let me take my insulin or test my blood sugar unless she was watching me, and lie to my mother about me inducing low blood sugars in order to get out of class. She wouldn’t even let me keep glucagon (emergency sugar injection) on my person in case I passed out from low blood sugar. 

 So one day I casually mentioned all this to my endocrinologist and she was really mad. She was really angry at the school nurse for mistreating me like that and informed me of this thing called a 504 plan. A 504 plan protects students with disabilities and chronic illnesses from discrimination by outlining exactly what a student needs to meet their special needs. For me, this meant I had to be able to keep ahold of my own meds in case of emergency and keep track of my own glucose levels, that I would never be marked late for a class if I was busy treating a low, and I could pause the clock on a standardized test to check my blood sugar and treat it. If you have a disability and you’re still attending public school, PLEASE read up on 504 plans because they saved me so much grief when I was still in school. It might help you too. Here’s some more information about 504 plans:

http://ift.tt/1JrDeGu

http://ift.tt/2fdcgLB

Passing this along. I would not have made it this far without my disability documentation in school.
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Viktoria Modesta

Self-described “bionic girl” and pop artist. Hell yes forever.

are we not gonna talk about the fact that the music video these gifs are from, and the song that plays in it, is essentially a giant “fuck you” to society’s views of “disabled people are broken/useless/should be pitied”? or the fact that she WILLINGLY CHOSE to have her leg amputated? [due to medical reasons, there were other options presented to her, but again she said “fuck it” and chose the amputation because that was the safest option in her opinion, and she never once lets this decision hinder her or change anything about her.] Or how she has teamed up with the Alternative Limb Project who not only supplies her with these downright masterful prosthetic limbs but also helps other amputees afford such limbs for themselves? And helps said amputees express themselves and be creative with their newfound limbs? [fyi, the glowy leg is NOT cgi, that is 100% real, LED powered prosthesis. Fuck yeah engineering, baybee!]

Viktoria Modesta is quite possibly the greatest thing to happen to pop music and maybe even modern society as a whole, because she is literally proving that disabled people are not broken, they are not weak; they are strong, can put “normal” abled bodied people in their place, and look downright amazing while doing so. She is an inspiration and if you don’t think that is incredible then get the fuck away from me, you are not worth anyone’s time.
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roachpatrol:

kestrel-tree:

Dealing with executive dysfunction and ADHD becomes so much easier when you stop trying to do things the way you feel like you should be able to do them (like everyone else) and start finding ways that actually work for you, no matter how “silly” or “unnecessary” they seem.

For years my floor was constantly covered in laundry. Clean laundry got mixed in with dirty and I had to wash things twice, just making more work for myself. Now I just have 3 laundry bins: dirty (wash it later), clean (put it away later), and mystery (figure it out later). Sure, theoretically I could sort my clothes into dirty or clean as soon as I take them off and put them away straight out of the dryer, but realistically that’s never going to be a sustainable strategy for me.

How many garbage bins do you need in a bedroom? One? WRONG! The correct answer is one within arms reach at all times. Which for me is three. Because am I really going to get up to blow my nose when I’m hyperfocusing? NO. In allergy season I even have an empty kleenex box for “used tissues I can use again.” Kinda gross? Yeah. But less gross than a snowy winter landscape of dusty germs on my desk.

I used to be late all the time because I couldn’t find my house key. But it costs $2.50 and 3 minutes to copy a key, so now there’s one in my backpack, my purse, my gym bag, my wallet, my desk, and hanging on my door. Problem solved.

I’m like a ninja for getting pout the door past reminder notes without noticing. If I really don’t want to forget something, I make a physical barrier in front of my door. A sticky note is a lot easier to walk past than a two foot high cardboard box with my wallet on top of it.

Executive dysfunction is always going to cause challenges, but often half the struggle is trying to cope by pretending not to have executive dysfunction, instead of finding actual solutions.

i left cabinet doors open all my life and couldn’t make myself stop leaving them open until i figured out my subconscious just wants to know where everything is at a glance. i put labels on each cabinet door for what was behind the cabinet and after that i was a lot better at closing them. 

showers are hard for me because they involve a lot of steps to get in and out. buying cleaning hand wipes helps me stay a lot cleaner and happier when i’m too tired or distracted to make myself be a normal person– they’re faster and involve way less prep time, decision making, and unpleasant physical sensations. 

i have disordered eating because, again, getting food is complicated, much less cooking anything. buying 10-12$ of cliff bars at a go and keeping them in my room by my bed gives me a headstart on breakfast and lets me take my meds on time. otherwise i would lie in bed, not taking my meds because i had to eat, and not eating because i was too tired and nauseous from being hungry to get out of bed.  

‘just try harder’ is not a solution. figuring out the actual problem and addressing it is the solution.

’normal’ isn’t the goal. you can’t be normal. it’s too late, but you know what, fuck normal. trying to be normal is going to kill you. ‘functional’ is the goal, and you can be functional. you can kick ass at functional. and that’s a lot better. 
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Friends, family members and loved ones of learning disabled and mentally ill people need to have a working knowledge of what Executive Dysfunction is, and respect the fact that it is a prominent feature of that person’s psychology and life.

Executive Dysfunction is best known as a symptom of autism and ADHD, but it also features in depression, anxiety disorders schizophrenia, OCD (which by the way is also an anxiety disorder), personality disorders; etc, a whole myriad of mental illnesses and disabilities can result in executive dysfunction.

Years ago when I was like 14 and had recently learned of my autism diagnosis, I watched a youtube interview between autistic people, and an autistic woman said something along these lines:

“Sometimes, a lightbulb will burn out, but I cannot change it. I have the physical capability to change the lightbulb, and I want to change the lightbulb, and I know I need to do it, but because of my autism I just don’t do it. So the lightbulb remains unchanged for weeks. Sometimes people have to change the lightbulb for me.”

When she said that I related so much, because constantly throughout my whole life I have wanted and needed to do things with my wanting and needing being akin to my spurring an extremely stubborn horse who refuses to move. For the first time I learned that I wasn’t just “lazy”, I had a condition that prevented me from doing things as easily as other people can, but unfortunately it took me years since then to understand that.

Imagine that you are a horserider, but your horse is entirely unwilling to move even if you want to move. You dig in your heels, you raise the reins, but the horse refuses to respond. Your wants and needs are the rider, and your executive functions (the parts of your mind responsible for getting things done) are the horse.

I think it’s incredibly dangerous for neurotypical loved ones to not understand, or be aware of, or respect executive dysfunction. Neurotypical can assume that we are just being lazy, careless, selfish or difficult, when in reality we want to do the thing but our brains prevent us from consistently and reliably doing the thing.
That misinterpretation can lead to toxic behavior and resentment on the part of the loved one, which will harm us emotionally and do us a lot of damage gradually over time.
That damage can take the form of internal self-criticism, complicating executive dysfunction even further and making it worse.

edited for easier reading!

I think about this a lot, because I have to.  In my own life, as a parent who struggles with executive dysfunction and yet has to teach a child basic life skills, it’s important to know my blind spots and learn to function around them.  He’s watching me and learning from my example, so I have to do my best to explain what I can’t always do, and try to do it anyway.

Executive function is such a fundamental and yet hidden trait.  It is in charge of reasoning, flexibility, problem solving, planning, and execution/prioritization of necessary steps in any action.

Each task is never one task.  Take changing the lightbulb - from beginning to end, it’s a series of steps that must be put in proper order:

Notice light bulb is burnt out.

Recognize that it can be fixed by putting in a new light bulb

Remember where new light bulbs are stored

Go to light bulb storage area

Select new one

Find stool or chair to stand on

Take out old bulb, put in new one

Screw in bulb

Replace chair or stool to previous spot

Throw away old bulb

That’s not even all of them, but it’s a good enough summary for now.  There are hidden stumbling blocks in every single step. 

A burnt out bulb may go unrecognized as a problem - there’s two other bulbs in the room, it’s a little dimmer, so what?  It might take all three burning out before you see it as a problem.

Maybe you forgot where the bulbs are, because it’s been a while.  Searching the house is a task you put off, because it’s messy/disorganized/big/you have other more pressing matters.  The bulb can wait.

You find the bulb storage, but you’re out of new ones.  You have to shop.  You’re busy, you put it off until the next time you shop, by which time you’ve forgotten you need a light bulb.  Repeat cycle.

You’ve been depressed for a while, or maybe you’re just a messy person.  A stack of important documents is on the chair you’d use to stand on to get to the bulb.  You know if you move those documents you’ll forget where they are, and it’s tax stuff/homework/your mom’s birthday card, and you can’t forget that.  The bulb gets put aside until you deal with those things.  But you don’t want to deal with them now, so the bulb waits.

Throwing out the bulb requires safe disposal so that you don’t break it and accidentally cut yourself, or someone else in your home.  You have no idea how to safely dispose of it.  You put off changing the bulb until you figure out what to do with the old one.

On and on and on.  Each step requires problem solving, prioritization, and reasoning.  These are the hidden processes that go on in our minds every single moment of every day.  Difficult tasks build up, compounding the problem of completing others, until each action requires ten more before you can solve the minor problem you started with.  Changing a light bulb ends in a night of doing your taxes.  Doing the dishes ends in standing in the dish soap aisle at the grocery story for a half hour trying to figure out which soap to buy for the dishwasher.

When a simple action requires the same effort from you as the most complex, abstract problem-solving…. to put it mildly, you’re fucked.  Every day tasks require exhausting mental gymnastics.

So, be kind to the person who can’t seem to change a light bulb.  There’s a lot that can stand in the way.

this is such a good addition to my post

Important info!

“Difficult tasks build up, compounding the problem of completing others, until each action requires ten more before you can solve the minor problem you started with. Changing a light bulb ends in a night of doing your taxes. Doing the dishes ends in standing in the dish soap aisle at the grocery story for a half hour trying to figure out which soap to buy for the dishwasher.”

I relate to this so hard.
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But there was one scenario in which the Autistic people left a positive first impression: when people read a transcript of their words instead of seeing and hearing the Autistic people saying those words, observers rated them as more likable and more intelligent. In fact, in the scenario where observers just read the written words of Autistic and non-autistic people, they rated both groups the same. For non-autistic people, the written transcripts were their lowest-rated mode of communication, although only by a small amount. For Autistic people, the written transcripts were their highest-rated mode of communication by a very significant margin.

Written communication is the great social equalizer.

Remember this if you start to fear your Autistic child is spending too much time interacting with others online and not enough time interacting with others face-to-face.  Online communication is a valid accommodation for the social disability that comes with being Autistic.  We need online interaction and this meta-study demonstrates exactly why that is the case.


-

Autism and the Burden of Social Reciprocity | Sparrow R. Jonesunstrangemind.com

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“If autism isn’t caused by environmental factors and is natural why didn’t we ever see it in the past?”

We did, except it wasn’t called autism it was called “Little Jonathan is a r*tarded halfwit who bangs his head on things and can’t speak so we’re taking him into the middle of the cold dark forest and leaving him there to die.”

Or “little Jonathan doesn’t talk but does a good job herding the sheep, contributes to the community in his own way, and is, all around, a decent guy.” That happened a lot, too, especially before the 19th century.

Or, backing up FURTHER

and lots of people think this very likely,

“Oh little Sionnat has obviously been taken by the fairies and they’ve left us a Changeling Child who knows too much, and asks strange questions, and uses words she shouldn’t know, and watches everything with her big dark eyes, clearly a Fairy Child and not a Human Like Us.”

The Myth of the Changeling child, a human baby apparently replaced at a young age by a toddler who “suddenly” acts “strange and fey” is an almost textbook depiction of autistic children.

To this day, “autism warrior mommies” talk about autism “stealing” their “sweet normal child” and have this idea of “getting their real baby back” which (in the face of modern science)  indicates how the human psyche actually does deal with finding out their kid acts unlike what they expected.

Given this evidence, and how common we now know autism actually is, the Changeling myth is almost definitely the result of people’s confusion at the development of autistic children.

Weirdly enough, that legend is now comforting to me.

I think it’s worth noting that many like me, who are diagnosed with ASD now, would probably have been seen as just a bit odd in centuries past. I’m only a little bit autistic; I can pass for neurotypical for short periods if I work really hard at it. I have a lack of talent in social situations, and I’m prone to sensory overload or you might notice me stimming.

But here’s the thing: life is louder, brighter and more intense and confusing than it has ever been. I live on the edge of London and I rarely go into the centre of town because it’s too overwhelming. If I went back in time and lived on a farm somewhere, would anyone even notice there was anything odd about me? No police sirens, no crowded streets that go on for miles and miles, no flickery electric lights. Working on a farm has a clear routine. I’d be a badass at spinning cloth or churning butter because I find endless repetition soothing rather than boring.

I’m not trying to romanticise the past because I know it was hard, dirty work with a constant risk of premature death. I don’t actually want to be a 16th century farmer! What I’m saying is that disability exists in the context of the environment. Our environment isn’t making people autistic in the sense of some chemical causing brain damage. But we have created a modern environment which is hostile to autistic people in many ways, which effectively makes us more disabled. When you make people more disabled, you start to see more people struggling, failing at school because they’re overwhelmed, freaking out at the sound of electric hand dryers and so on. And suddenly it looks like there’s millions more autistic people than existed before.

Clearest conceptualization I’ve seen of the interaction of individual and environmental factors in disability. 
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When I was younger and more abled, I was so fucking on board with the fantasy genre’s subversion of traditional femininity. We weren’t just fainting maidens locked up in towers; we could do anything men could do, be as strong or as physical or as violent. I got into western martial arts and learned to fight with a rapier, fell in love with the longsword.

But since I’ve gotten too disabled to fight anymore, I… find myself coming back to that maiden in a tower. It’s that funny thing, where subverting femininity is powerful for the people who have always been forced into it… but for the people who have always been excluded, the powerful thing can be embracing it.

As I’m disabled, as I say to groups of friends, “I can’t walk that far,” as I’m in too much pain to keep partying, I find myself worrying: I’m boring, too quiet, too stationary, irrelevant. The message sent to the disabled is: You’re out of the narrative, you’re secondary, you’re a burden.

The remarkable thing about the maiden in her tower is not her immobility; it’s common for disabled people to be abandoned, set adrift, waiting at bus stops or watching out the windows, forgotten in institutions or stranded in our houses. The remarkable thing is that she’s like a beacon, turning her tower into a lighthouse; people want to come to her, she’s important, she inspires through her appearance and words and craftwork.  In medieval romances she gives gifts, write letters, sends messengers, and summons lovers; she plays chess, commissions ballads, composes music, commands knights. She is her household’s moral centre in a castle under siege. She is a castle unto herself, and the integrity of her body matters.

That can be so revolutionary to those of us stuck in our towers who fall prey to thinking: Nobody would want to visit; nobody would want to listen; nobody would want to stay.

#it’s so so important to remember that representation is not one-size-fits-all#what is empowering to one person might be exhausting and oppressive to someone else#some people need stories about having the strength to save themselves#some people need stories about being considered worthy of being saved#some people need inspiration for their independence while others need validation that they don’t have to be able to do everything themselves#before you lash out against something PLEASE stop to consider:#is this inadequate and/or damaging representation?#or is it just something I don’t personally relate to? [X]
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i don’t give a fuck if hundreds of thousands of people are scamming the government for money if it means that hundreds of thousands of disabled people aren’t dying because the system failed them.

All this fear mongering about fakers cheating the system is really just another way to kill disabled people. Fact is, welfare fraud isn’t common and for everyone to act like it is … is full of shit.

And furthermore the people charged with welfare fraud are almost all poor people who just needed a little extra food, or a little extra cash to fucking survive. We’re penalizing the poor for being poor because the government doesn’t initially give them enough to live on.

When you’re disabled and on SSI, you make far below the poverty line, and you cannot even save up enough money to make it to the poverty line. If you’re really that fucking worried about someone getting an extra $50 for food by “cheating the system” … you have fucked up priorities. 

You really think they’re faking needing that $50 fucking dollars for food and necessities … then you’re fucking absurd, that’s barely any money to fucking live on with their other benefits from the government. 

Fact is, the government should be giving disabled people MORE money to live on and then people wouldn’t need to cheat the system for basic survival. 

I get 1500/mo for me and my daughter. I’m reduced to begging each month to make ends meet. And it took me four years to get on disabilty because they were convinced I was FAKING Lupus and fibro. Despite blood work, despite a support from a doctor who HATES the disability program saying I am fully disabled.  The State’s doctor tried to tell the court that I was faking my blood tests. The job coach had to be put on the spot by the sitting Judge to finally admit that with all the restrictions my doctor has on me that there is no job at my skill level I could do.

They take you jump through hoops and those hoops are on fire and at the end we’re told BE DAMN HAPPY FOR YOUR CRUMBS, BITCH. YOU ARE LAZY AND DESERVE NOTHING.

as someone who has been chronically ill for twelve years, i’ve struggled to find anyone (in the medical field, the legal field, or otherwise) who will take me seriously, i struggle even to get certain members of my own family or friends to believe how real and debilitating my illnesses are, and being sick has consumed and taken away my entire life - and still, after fighting for years for disability, i’ve gotten nothing but denials and, finally, a dismissal. my life will eventually end as a direct cause of not being able to get help. i would, too, would rather see a handful of people ‘cheating’ the system (a feat that is nearly impossible given the byzantine laws and those fiery hoops they force us to jump through), if it meant that the ill, the disabled, and the impoverished were able to receive assistance, were treated like their lives are worth something, and were given the ability to keep surviving with some modicum of dignity. no one should be made to feel that their lives mean nothing and are worthless because they’re ill/disabled. no one should have to struggle to buy basic necessities and food for their families, no one should have to choose between being able to pay the bills or being able to afford to eat, no person who desperately needs to be able to receive medical assistance should be denied it. poor and/or sick people are not disposable. they are not attention seeking, they do not enjoy being seen as ‘drains’ on the system, they are not lazy and weak. but the way it’s set up, far too many have to suffer or die in silence. i have wept in agony over this, for myself and for everyone who lives in fear and anguish because there’s nowhere to turn. people ask for help because they desperately need it, and everywhere we go, we keep being told we don’t deserve it.
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Accessibility is talked about like it’s only something disabled people need, like it’s an inconvenience or it’s something that goes above and beyond what the average person would expect. But abled people get their accessibility needs met without a thought. They get lights bright enough to see by, stairs, doors wide enough to fit through, chairs at the level they like, and all sorts of other things that are tailor-made just for them.

Abled people do have accessibility needs. The only difference is that abled people are granted access automatically and disabled people have to fight for that same privilege.
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[[Image description: Tweet by Jenna Rice @jenna_niccole reads “why is just making fun of disabled people considered horrible, but ACTUALLY KILLING US is ‘well maybe there was a reason/they’re better off’]]

Getting really fed up with people using Trump mocking a disabled person as a prop for “the worst ever,” yet these people couldn’t care less about tragedies disabled people actually face, like the 2016 Japan massacre of people with disabilities (will we ever even know the names of the victims?,) or the frequent cases here in the US where caregivers kill their disabled children and get sympathy, or history of Aktion T4, or what’s happening in North Korea now, or deaths in the UK over disabled people being declared “fit to work” and this decision killing them, or the horrifying statistics of cops killing disabled citizens (that up to half of people killed by cops in the US are disabled,) or the fact that 43,000 people will die per year if the ACA is repealed and not properly replaced… If you’re going to use disabled people as props in your activism, maybe you should educate yourselves and ACTUALLY include us in your activism.

(For further reading on disability issues and Trump’s administration specifically, here have just a few more links for the road. And most of them are from the campaign. Things have gotten, and can get, worse.)

we are sick of being used as mere props for sympathy

#most the time i see disability discussed on here its usually being used as an addendum to a different issue #like it’s used to add greater weight to your specific cause #but god forbid people talk about disability in general -@pressxtodavid  this is really important

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August 2018

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